Wednesday, January 23, 2013

Third appt at Texas Children's

January 23rd
Ok, Drop off Brody with his sitter by 7:45 and head to Houston to Texas Children's, traffic really wasn't that bad so we go there about 35 minutes early.

Chase and I sat in the waiting room for a little while until the cardiologist came to get us to start the echo cardiogram.
 So you know the drill by now, shirt up, pants down a little, and goop on! READY SET GO!!! GO....GO....OK an hour and thirty minutes later we are done with the echo. This little girl was on the move, she is very active..which is a good thing. Anyway we go in to the " counsel room" and sit down with two cardiologist, they bring diagrams, information about Brynn's heart. Then go on to tell us that they do not think at this point its SEVERE HLHS....however it can very easily become this. We need Brynn's Aortic valve and Mitral valve to grow and have good flow to increase the chances of it NOT being SEVERE HLHS. So PLEASE PLEASE PLEASE pray specifically that they grow. We do know there will be a surgery within a week of birth to fix a severe Aortic Arch obstruction at the least. We feel very positive, and know that GOD is so amazing. We have been praying so much for God to show us where he wants us to be, and we believe that he is calling us to Texas Children's. We know that Hermann is an amazing hospital and have a lot to be thankful for with them, but it just feels "right" with Texas Children's. We will go back in about 4 weeks to meet with the Fetal team, Cardiology team and OB team. Chase and I just really thank you all so much for your compassion, prayers and just full on support!!! We ask you to please continue as we need all of you prayers we can get. God is so good....PRAISE HIM IN ALL YOU DO!!

Tuesday, January 22, 2013

Third Appt

So we have a Miracle right....Wrong!!!! January 15th 6:30 am were on our way to Hermann in the Medical center...we stayed at my sister and brother in law's house the night before thinking it would be easier to get through traffic and stuff...NOPE NOT AT ALL! Thanks Houston Traffic...your horrible...but on a good note, I have an amazing sister and Brother in law that are so supportive and wonderful and they kept Brody for us that day....

So we FINALLY get there through the rain, cold and backed up traffic...We walk in to the Hospital and this wonderful woman named Courtney greets us and just takes my hand and is so kind, warm and understanding. She takes us back to the ultrasound room, ( we have two appts this day the Fetal appt to check Brynn's organs and growth and Echo Cardiogram) So the Fetal appt is first...Great here we go again...I should be used to exposing myself, but when your stomach looks like the Texas road map and your " Christan fish" tattoo that you have on your hip has turned in to a's a little embarrassing! LOL But here we go again..Pull the shirt up, pants down and goop me up, I am ready!!
  This ultra sound takes about 45 minutes also...the tech is really sweet. After she is done she sends in the Fetal Dr...We really liked him very kind, yet straight forward. He told us he agreed with the doctor we had at the last appt that he didn't really feel it was HLHS but we needed to go get the Echo cardiogram done first and then come back to see him after we were done there, so we could discuss there findings and what the game plan on delivery was. So Courtney is waiting for us smiling and walking us over to our Echo appt.

SERIOUSLY....AGAIN more goop and exposure...I am going to become a nudest before long with all this "hanging out!!!" LOL We start the echo cardiogram...the Tech is very nice she is bubbly and just's very dark and quite and warm in this room...nice place to take a nap...I think I even dosed off a second...she is very intense as to what she is doing, this has gone on for about and hour, when the Pediatric Cardiologist walks in....She sits down takes the   wand of the machine and continues to look over Brynn's Heart...after about 15 minutes I am so relaxed thinking everything will just fine....but then all of sudden I hear her tell her Tech..." ok so this valve measures what? ok and right down Hypo plastic...and this is what measurement is what?" UMMMMM EXCUSE ME WHAT DID YOU JUST SAY!!....I look at her and I know exactly what I heard....she turns to me and says hold on one moment and I will draw you a pictures....WHAT THE WORLD...IM NOT 5 WOMAN TELL ME WHAT YOU SAID AND THEN YOU CAN BE THE ART TEACHER!!....She finishes what she is doing and gets a diagram and starts drawing a picture of Brynn's Heart...basically telling us that is looks like this is HLHS and that there needs to be growth in the Mitrual  Valve for things to look better....all I can think is BREATHE....BREATHE....BREATHE but I can't I catch my breath, I can move, I can't do anything...then it hits me....the gut wrenching, bottom of your stomach whole body movement cry....I don't think I have ever cried so hard, so loud in my life.

My poor husband, he was amazing....He got up from the Chair grabbed me and didn't let me go. Here I am devastated as I am sure he is to, yet he only worries about me( if you don't know already HE IS AMAZING!!!) God really gave me the most amazing partner in life when he gave me Chase.This news was total shock to us, we thought we were in the clear of HLHS, but now were not....again...I start pleading with God in my mind..." Lord, please this can't were supposed to work a miracle, we were told something different already two weeks ago. WHY GOD WHY?" I cried for a good 15 minutes..I think cry is an understatement....I was is hysterics. So as I am crying the cardiologist asks me if I have any questions....REALLY, RIGHT NOW YOUR ASKING THIS...of course I have questions, Millions...but I can't even force my mouth to take shape to speak...I was numb again.

What do you say when you get this kind of's not fair, I don't understand...why did God choose us for this? What about Her is she OK in there now... then the word is spoken..SURGERY....scariest word ever when dealing with your children....But this is what we are faced with. SO as of now we are dealing with HLHS. She will have open heart surgery with in the first week of life and then follow up with at least two more surgery's with in the First two years of life. Chase and I believe in our amazing God, we know is is might and we know he has a plan....just think of all of you praying for her already...God loves when we come to him and give him all glory and that is exactly what we are doing. We know that no matter what, this is God's plan and we trust him 100%.

WE ARE going to Texas Children's tomorrow kind of for a second opinion but really just to see which hospital we feel is the best fit for our situation. Please be praying for the Doctors to have a clear view of her heart and be able tell us exactly what is going on. WE thank you for following this blog, the prayers and support... Please keep them coming. If you have questions please ask we don't mind!!! We will update tomorrow on what they tell us at Texas Children's. God bless each one of you!!!

Second Appt

So it's Christmas....lots to do, shopping, family time, eating...( I was really excited about all the food!!! LOL) We spent the weekend before Christmas with my mom and dad's family...all of us together...Aunt's, Uncle's, Grandparents, everyone...even my nephew Zaden's birth mother and was a wonderful time! God really blessed us this last year. Zaden my sweet adorable nephew was born and became apart of our lives in March of 2012...So we had so much to celebrate and be thankful this Christmas. Chase and I tried really hard not to let all the worry over come us during this time, but of course its hard, but we have to focus on the blessings we have already. Christmas eve was spent with the Kaiser side of the was very nice...everyone got together, played a white elephant game, we ate ( again loved the and just really had a nice time. Christmas day was spent with My Mother in law, sisters in law, and my husband's Grandfather...We truly are blessed with amazing family on all sides!!!

So we get through Christmas and have our next appt scheduled January 2....So we ask everyone...anyone please be praying for a miracle. We wanted a miracle so bad we could taste it. My Mom, Dad and Mother in law were with Chase and I. It felt good to have that support. So my " Pose" and I walk into the ultra sound room to look at our little GIRL, still hard to believe we are having a girl.
   You know the routine now...pull the shirt up, put goop on and watch the screen...and maybe the face of the tech...just maybe by a reaction of facial expression so we can get a feel for what is going on, but she was pretty much stone faced. So about 45 minutes goes by and she is done with what she has to do, and gets the doctor to come in and talk to us. The doctor walks in sits down looks over the ultra sound and starts talking. He was very kind, very explanatory and willing to answer any and all questions. He proceeds to tell us he thinks Brynn has Aortic Coartaion, which is basically were some of the blood isn't flowing like it should....I am thinking " the same time I am having to remind my self to breathe again." He proceeds to let us know that this is a heart disorder that is treatable, and he has several patients with this same thing, and they live normal healthy lives every day!!! SO I breathe and say " so your telling me its NOT HLHS....FOR SURE?" his response....that is what I am telling you, I again say It's not Hypo plastic Left Heart? he again says that is correct I do not believe its HLHS....
Here come the water works again...Belly flopping up and down and this time it even more odd because I have an audience...LOL so they get to see my stomach looking like a bounce house with now kids jumping on it! HA! Then Chase says so this isn't what we originally thought? And again we here " No, it's not" PRAISE GOD!!!!! We have a miracle!!!! The doctor still wants us to go see a Fetal Cardiologist in the Medical Center and have a fetal echo cardiogram done just to check on this " Aortic Coartation" No biggie, we got this!! Better to be safe than sorry and more prepared. So we leave there with so much off our shoulders and happy tears rather than devastating tears....I even posted on FB the amazing News...and you know when it hits FB its official! LOL

So will will see the doctors 4 weeks later to have the echo cardiogram done and go from there. Still praising God, and walking with God through this journey were ready for this we thought.

Monday, January 21, 2013

Starting our Journey with Brynn Faith

Let us start by saying thank you all for the prayers! You all have been so amazing with the love and support you have provided through the beginning of this journey we are on.

So here we Go....September 2012 "Chase....I think I am pregnant!!!" Shock and excitement immediately set see we have a 2 year old son Brody and he took us a year to get pregnant and that was a to get pregnant the month we started trying was amazing (and so GOD) !!!! Then the nervousness set in...TWO KIDS??!!! EEKKK!!! I am over the moon excited but how in world am I going to have TWO KIDS...breathe Kellie Ann, Breathe...people do this every day and everything is fine...So the Kaiser's will be a family of 4 rather than a family of we go!!!

Fast forward to December 2012, 18 weeks pregnant driving to our doctors appt to find out what this sweet bean growing inside of me is. Girl or Boy? Chase thinks Girl, I think Boy. We get in the room, I lay down pull up my shirt and can't be any more thrilled. So I am laying there with all this warm goop...(it was nice to have it warm, I have had the cold stuff that makes you jump so far off the table you belly jiggles everywhere and well...that's just not cute! LOL) the ultra sound tech is looking at everything and the she's a GIRL!!!! We had a name already picked out so BRYNN FAITH it is! Chase and I said we really didn't care the sex as long as "it" is healthy but secretly we were so happy about her being a girl! So normally at this appt they check gender and the organs of the baby to make sure they are growing properly, no big deal, we have one PERFECT HEALTHY AMAZING CHILD so naturally we will get another. That's how it works, right? Or so we thought. We knew about 35 minutes in to this ultra sound something wasn't right, the tech was really focusing in on her heart, and looking at the screen very intense. No biggie right?...she just thinks my little GIRL is beautiful and is taking so many pictures so she can start her modeling career early...right??? No, soon after she is done she asks the fetal Doctor to come in and take a look...OK, this just got REAL! what the hay is going on? The doctor tells us she is concerned with the "baby's" heart...she doesn't think the "baby's" heart is developing correctly. As she is saying this for some reason all I am thinking is LADY the "baby" is  A GIRL AND HER NAME IS BRYNN FAITH!!! My mommy instinct went all cheetah like for a second...I had to tell my self again "BREATHE Kellie Ann...Breathe!!!" She tells us she thinks this is either just to early to tell because of gestation or she thinks Brynn might have HLHS (Hypo plastic Left Heart Syndrome), this is where the Left ventricle of the heart isn't developing correctly. Tears start to flow out the sides of my eyes...I am still laying there with my belly exposed, at this point my flabby belly is going a million miles an hour from me crying so hard I am sure it looked like the ocean tide rolling in HA! But really you never expect to hear these kinds of things especially when your have one healthy child.

So we leave the appt, numb lost and wanting answers....we immediately start praying, pleading with God...Lord, please don't let this be, let it be a mistake, take this from our sweet Brynn. Lord,I am selfish, these things don't happen to me. They happen others...But this was real and we knew if we were going to get through the next two weeks ( our next appt was scheduled for two weeks later) we needed prayer and God!! So ok, Christmas is coming lets just get through Christmas and we will deal later....